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‘No matter what the cost’: A qualitative study of the financial costs faced by family and whānau caregivers within a palliative care context

NZ Literature Abstract

originally posted by WM Admin on 16 February 2015 and updated 25 June 2015


Merryn Gott
Ruth Allen
Tess Moeke-Maxwell
Clare Gardiner
Jackie Robinson

Year of Publication



Palliative Medicine, 29(6), 518-528

Publication Type

Journal article (peer reviewed)

Publication Status



In this qualitative study, the authors interviewed 30 family/whānau caregivers in Auckland, who were currently caring for someone with a life-limiting illness or had done so within the preceding year, to explore the nature and range of financial costs incurred by family caregiving within a palliative care context. "Costs of caregiving were significant and, for participants, resulted in debt or even bankruptcy. A range of direct (transport, food and medication) and indirect costs (related to employment, cultural needs and own health) were reported ... The palliative care context increased costs, as meeting needs were prioritised over cost. In addition, support from statutory service providers to access sources of financial support was limited". The authors discuss the implications of these findings.

Type of Study


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